Dementia and Black and Minority Ethnic Communities: resources
We have collected the following reports, toolkits and publications as part of our Dementia and Black and Minority Ethnic Communities project. They cover a wide range of issues and communities. If there is something we need to add, please do get in contact with us.
Websites and organisations
- Dementia Alliance for Culture and Ethnicity
- Culture Dementia UK
- Faith Action - resources on faith and dementia
- Irish in Britain - Cuimhne memory loss project
- Chinese National Healthy Living Centre - includes leaflets in Chines on dementia and on the link between smoking and dementia.
- Nubian Life
- Asian Peoples Disability Alliance
Presentations from our events
Dementia and black and minority ethnic communities - David Truswell (London and Birmingham events)
DDXN - Dr Jay Chauhan (Birmingham event)
Yecco - Alex Jadavji (Birmingham event)
BME Communities and Dementia - Akhlak Rauf (Leeds event)
Articles and publications
- Black and minority ethnic people with dementia and their access to support and services. King's College London
- Black and minority ethnic communities and dementia: Where are we now? Race Equality Foundation
- Caring for Dementia: Exploring good practice on supporting South Asian carers through access to culturally competent service provision. Meri Yaadain
- Dementia and cancer in the Irish community in Britain. Race Equality Foundation
- Dementia does not discriminate: The experiences of black, Asian and minority ethnic communities. House of Commons All-Party Parliamentary Group on Dementia
- Dementia, Equity and Rights Report. Race Equality Foundation
- Dementia in black and minority ethnic communities: Meeting the challenge. Findings from a one day learning event from Age UK and the Race Equality Foundation
- Dementia information for black, asian and minority ethnic (BME) communities. Central and North West London NHS Foundation Trust
- Dementia in Gypsies and Travellers. Leeds GATE
- Engaging people with dementia from Black and Minority Ethnic (BME) groups in Memorybilia. Dementia Voices
- Faith and dementia resources. Faith Action
- Inclusion of people from Black, Asian and other minority ethnic communities in research on dementia. People in Health West of England
- The Dementia Experiences of People from Caribbean, Chinese and South Asian Communities in Bristol. The Bristol BME People Dementia Research Group
- The importance of culture in care for dementia patients. BBC News
- The unique challenges dementia presents for black, Asian and minority ethnic communities. Joseph Rowntree Foundation
- Why black and minority ethnic communities need targeted dementia services. The Guardian
- Black, minority ethnic and refugee (BMER) communities and the National Dementia Strategy: the London experience Diversity in Health and Care June 201
- Perceptions of dementia and use of services in minority ethnic communities: a scoping exercise. University of Bradford
- Improving the care of Black African and Caribbean people with memory problems. University College London
- Reaching out effectively to Gypsies and Travellers. The Journal of Dementia Care
- Dementia in a Black and minority ethnic population: characteristics of presentation to an inner London memory service. BJPsych Bulletin
- Barriers Faced by the People with Dementia in the Black and Minority Ethnic Groups in Accessing Health Care and Social Services. Journal of Gerontology & Geriatric Research
- The Reminiscence Tea House Journal of Dementia Care Vol 23, No 3 2015 (David Truswell with Mary Leung, Tom Lam and Gill Tan)
- Communities can’t be left to ‘look after their own’ Journal of Dementia Care 24(6) November 2016 pp26-28 (David Truswell with C Jackson, Enid Jackson and Sidonie Hawthorne)
- The impact of dementia on migrant communities: A complex challenge in a globalised world Alzheimer’s, Dementia & Cognitive Neurology, December 2016 Volume 1(1): 1-3
- Early Stage Work with Raising Awareness about Vascular Dementia in the African-Caribbean Community in London Int J Neurorehabilitation 2016
- Dementia, Culture and Ethnicity Issues for All, Edited by Julia Botsford and Karen Harrison Dening
- Jutlla, K. & Moreland, N. (2007). Twice a Child III: The Experiences of Asian Carers of Older People with Dementia in Wolverhampton.
- Jutlla, K. (2015). Dementia and Caregiving in South Asian Communities. In Botsford, J. & Harrison Denning, K. Dementia, Culture and Ethnicity: Issues for All. Jessica Kingsley: London, pp. 107-126.
- Hossain, M. Z. Dewey, A. Hakak, Y. & Jutlla, K. (July 2014). Understanding dementia among the Bangladeshi community in England. Alzheimer's & Dementia: The Journal of the Alzheimer's Association. Vol. 10, No. 4, pp. 762–P763
- Jutlla, K. (2014). The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK. Ageing and Society, Vol. 35, No. 5, pp. 1032-54. doi:10.1017/S0144686X14000658
- Jutlla, K. & Lillyman, S. (2014). An Action Research Study Engaging in the Use of Storyboarding as Research-based Teaching to Identify Issues Faced when Working with People with Dementia from Minority Ethnic Communities. Worcester Journal of Learning and Teaching. Issue 9, pp. 23-35.
- Jutlla, K. (2013). Ethnicity and Cultural Diversity in Dementia Care: A Review of the Research. Journal of Dementia Care. Vol. 21, No. 2, pp. 33-39.
- Jutlla, K. Parsons, M. Coaten, R. Gardiner, L. & Brooker, D. (2013). Capturing progress in creative arts and dementia. Journal of Dementia Care. Vol. 21, No.1, pp. 26-28.
- Jutlla, K. Graham, S. & Jolley, D. (2012). The care of older people with dementia and other mental disorders when they are admitted to General Hospitals: learning from a network of Mental Health Liaison teams. The Journal of the Institute of Ageing and Health (West Midlands). Vol. 1, No. 18, pp. 29-30.
- Jutlla, K. (2010). Migration and Asian communities; understanding migrant Sikh carers caring for an older person with dementia in Wolverhampton. Generations Review. 20 (3).
- Kaur, H. Jutlla, K. Moreland, N. & Read, K. (2010). How a link nurse ensured equal treatment for people of Asian origin with dementia. Nursing Times. 106 (24), pp. 4-9.
- Jolley, D. Moreland, N. Read, K. Kaur, H. Jutlla, K. & Clark, M. (2009). The ‘Twice a Child’ Projects: learning about dementia and related disorders within the black and minority ethnic population of an English city and improving relevant services. Journal of Ethnicity and Inequalities in Health and Social Care. 2 (4), pp. 4-9.
- Jutlla, K. & Moreland, N. (2009). The personalisation of dementia services and existential realities: understanding Sikh carers caring for an older person with dementia in Wolverhampton. Journal of Ethnicity and Inequalities in Health and Social Care. 2 (4), pp. 10-21.
Dementia in Gypsy and Traveller Communities
- Tilki, M (2016) ‘Dementia in Gypsies and Travellers: a brief guide for commissioners and providers’ Leeds GATE, Irish in Britain, Irish Memory Loss Alliance. http://travellerstimes.org.uk/UserFiles/Files/Dementia-in-Gypsies-and-Travellers.pdf
- Tilki, M. (2016) ‘Dementia among Gypsies and Travellers’ The Journal of Dementia Care, July / August 2016, Volume 24, Number 4. https://d3gxp3iknbs7bs.cloudfront.net/attachments/4bbf837d-068d-43c1-8aac-db1e99da0c76.pdf
- Tilki, M. (2016) ‘Reaching out effectively to Gypsies and Travellers’ The Journal of Dementia Care, September / October 2016, Volume 24, Number 5. http://www.irishinbritain.org/cmsfiles/Reaching-Out-to-Gypsy-Travellers.pdf
- Tilki, M., (2015) ‘Dementia in Gypsy and Traveller Communities’ Leeds GATE news, 7th September 2015, http://leedsgate.co.uk/dementia-gypsy-and-traveller-communities
- Leeds GATE (2016) ‘Memory loss in Gypsies and Travellers’ Visual notes by artist Tom Bailey at the launch of the new best practice guide, "Dementia in Gypsies and Travellers", by Leeds GATE and Irish In Britain. https://www.youtube.com/watch?v=w0TwxFD5tVk
- Prior, P. (2013) ‘Support and care for people living with dementia from minority communities’ February 2013, North East Dementia Alliance. http://www.ncl.ac.uk/media/wwwnclacuk/instituteforageing/files/dementia-in-minority-communities-support.pdf
- Marshall, M., Tibbs, M. (2006) ‘Social Work and People with Dementia, Second Edition: Partnerships, Practice and Persistence’ Policy Press, 8 Nov 2006. https://books.google.co.uk/books?id=Sd81DwAAQBAJ&pg=PA59&lpg=PA59&dq=irish+travellers+dementia&source=bl&ots=1T47v20hgt&sig=5tY5xLJYQbmxDwE0_SOhWsb4H90&hl=en&sa=X&ved=0ahUKEwj-hvze0ObXAhWJHsAKHamUAkI4ChDoAQhIMAg#v=onepage&q=irish%20travellers%20dementia&f=false
- Centre for Policy on Ageing (2016) ‘Diversity in older age – Gypsies and Travellers’ Centre for Policy on Ageing – Rapid Review, http://www.cpa.org.uk/information/reviews/CPA-Rapid-Review-Diversity-in-Older-Age-Ethnic-Minorities-Gypsies-and-Travellers.pdf
- Lane, P., Spencer, S., McCready, M. (2012) ‘Perspectives on ageing in Gypsy families’ Joseph Rowntree Foundation, January 2012. https://www.jrf.org.uk/sites/default/files/jrf/migrated/files/ageing-in-gypsy-families-summary.pdf
- Lane, P., Tribe, R., (2010) ‘Towards an understanding of the cultural health needs of older gypsies (sic)’, Working with Older People, Vol. 14 Issue: 2, pp.23-30, https://doi.org/10.5042/wwop.2010.0264
- Pavee Point and the Alzheimer’s Society of Ireland, Republic of Ireland https://www.alzheimer.ie/Get-Involved/Dementia-Friendly-Communities/Dementia-Friendly-Projects/Traveller-Education-Training-Pavee-Point.aspx
- An information poster about the signs and symptoms of dementia was produced for use by primary health care workers for the Traveller Community
- As a result of the training from The Society perspective we understood more about the resources that are needed to improve awareness about dementia in the Traveller Community but also a deeper understanding of the needs of Travellers and the issues they are faced with
- Hodges, N., Cemlyn, S., (2013) The Accommodation Experiences of Older Gypsies and Travellers: Personalisation of Support and Coalition Policy, Social Policy and Society, Volume 12, Issue 2, April 2013, p.p. 205-219, https://doi.org/10.1017/S1474746412000413
In the press
- Alzheimer’s Society (2015) ‘A family who changed their travelling lifestyle to help support a father with dementia’ January 2015. https://www.alzheimers.org.uk/info/20159/jan_2015/638/a_family_who_changed_their_travelling_lifestyle_to_help_support_a_father_with_dementia
- The Telegraph (2012) ‘Nurse faces sack for ‘cutting gypsy’s hair’’ (sic) 7th February 2012. http://www.telegraph.co.uk/news/health/news/9066341/Nurse-faces-sack-for-cutting-gypsys-hair.html